Epilepsy Program
- About Us
- Our Care
- What to Expect
Helping Kids With Epilepsy Thrive
ÀÖ²¥´«Ã½ Children’s epilepsy specialists help children and families better manage seizures and daily life. We provide a range of care, from medicine and diet to surgery and neurostimulation. We focus on all the minutes in the day that a child isn’t having a seizure. In other words, we help families see the whole picture.
Our epilepsy teams are part of recognized pediatric neuroscience centers in Delaware and Florida. Among them are renowned researchers and experts in epilepsy and seizure care. Our Level 4 Epilepsy Center in Delaware provides the most advanced treatments for kids with complex conditions. We lead the way, advocating for new approaches in managing seizures and improving quality of life for children.
As a team, our pediatric neurologists, neurosurgeons, clinical nurses, neuropsychologists, dietitians, care coordinators and social workers tend to every aspect of your child’s health.
Together, we work to help your child spend more time just being a kid. We empower your whole family throughout the journey.
Two Leading Pediatric Neuroscience Centers
Our neuroscience centers provide highly advanced, integrated medical services just for kids and teens with neurologic and neuromuscular conditions. Learn about our focused programs, advanced research and leading care.
Neuroscience Center, Florida
Located in Orlando, Florida.
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“As a result [of her care at ÀÖ²¥´«Ã½], she’s now an active, healthy, and strong little girl who always has a smile on her face. Additionally, she’s also thriving in kindergarten!â€
“We are firm believers in the diet and the way it is administered. [T]he diet, while initially hard, allowed us to breathe and helped wean Reagan from one medication.â€Â
“Our experience with ÀÖ²¥´«Ã½ Children’s has been nothing short of amazing. We had gone to another hospital in the next state with a TSC doctor. The experience was day and night.â€
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Pediatric Epilepsy Expertise in FloridaÂ
Our epilepsy specialists work together to create treatment plans that consider every aspect of your child’s life. We don’t just see the seizure. We see the whole child.
We provide complete epilepsy care at state-of-the art facilities at ÀÖ²¥´«Ã½ Children’s Hospital, Florida in Orlando.
Our pediatric neurosurgeons in Florida use advanced surgical assistance to perform highly precise minimally invasive epilepsy surgery.
ÀÖ²¥´«Ã½ neurology team provides convenient epilepsy medical care and follow-up services at speciality care locations.
ÀÖ²¥´«Ã½ offers everything your child needs within the same system. You get expert epilepsy care, surgery and long-term care in one place.
Meet Our Epilepsy Specialists in Florida
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and young adults with neurology conditions.
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Helen Cano, R.EEG.T
Supervisor Neurodiagnostics Lab
Level 4 Epilepsy Center in Delaware
The Level 4 pediatric epilepsy center at ÀÖ²¥´«Ã½ Children’s Hospital, Delaware offers the highest standard of epilepsy care for children. Rated by the , we offer advanced diagnostic tools, leading-edge treatments and specialized experts dedicated to managing even the most complex epilepsy cases.
When you choose a Level 4 epilepsy center, you’re giving your child the best possible chance for effective epilepsy management. In addition to treating hard-to-control seizures, we address the cognitive, psychological and social aspects of your child's wellness. We research epilepsy and offer clinical trials, and potential therapies, you can’t get everywhere.
Pediatric Epilepsy Expertise in Delaware
Our epilepsy specialists work together to create treatment plans that consider every aspect of your child’s life. We don’t just see the seizure. We see the whole child.
The epilepsy program at ÀÖ²¥´«Ã½ Children’s Hospital, Delaware, rated a Level 4 epilepsy center, offers the highest level of care for the most complex cases.
We’re doing important neuroscience research in epilepsy, and offering access to clinical trials and treatments you can’t get everywhere.
We make it easy for families. Your child can get electroencephalogram (EEG) testing and get results on the same day.
We partner with the Epilepsy Foundation of Delaware to provide advocacy, support and resources for families.
Our epilepsy program coordinator helps you navigate all the care your child needs.
Meet Our Epilepsy Specialists in Delaware Valley
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and young adults with neurology conditions.
Epilepsy Expertise, Just for KidsÂ
Our epilepsy specialists work together to create treatment plans that consider every aspect of your child’s life. We don’t just see the seizure. We see the whole child.
ÀÖ²¥´«Ã½ neurologists care for kids with epilepsy at convenient locations throughout the Delaware Valley, Northeast Florida and Central Florida.
We offer highly advanced, coordinated epilepsy care and surgery at our Level 4 rated epilepsy center at ÀÖ²¥´«Ã½ Children’s Hospital, Delaware.
Our Central Florida epilepsy team offers complete care and surgery in state-of-the-art facilities at ÀÖ²¥´«Ã½ Children’s Hospital, Florida in Orlando.
In Northeast Florida, our epilepsy experts work closely with Wolfson Children’s Hospital to provide the latest care for kids at ÀÖ²¥´«Ã½ Children’s Health, Jacksonville.
Meet Our Epilepsy Specialists
Our specialists are at the forefront of their fields. They work tirelessly to improve the quality of life for children and young adults with neurology conditions.
Information and Advice From ÀÖ²¥´«Ã½ Experts
Learn more about your child's condition and how to help them at home, at school and with friends.
Epilepsy Seizure Rescue Medicines
From ÀÖ²¥´«Ã½ KidsHealth®
Programs & Services
ÀÖ²¥´«Ã½ Children's provides the latest care for all types of epilepsy and seizures, including hard-to-treat refractory epilepsy, or seizures that don’t respond to medicines. No matter where your family is in your epilepsy journey, we help guide you to the next right thing. We base our treatment on your child’s and family’s goals.
We offer a range of services and treatment options:
- Advanced diagnostics, including the safe, accurate neuroimaging and 24/7 EEG testing at state-of-the-art Epilepsy Monitoring Units (EMUs).
- Ketogenic diet counseling from registered dietitians to help control seizures.
- Neuromodulation therapies like vagus nerve stimulator (VNS) therapy to help reduce seizure frequency and duration.
- Epilepsy surgery from neurosurgeons who use highly advanced image guidance system for the best possible outcomes.
- Neuropsychology services from behavioral health specialists who know how seizures can affect a child’s thinking and behavior.
- Education and support for daily living, including sick day care plans and seizure action plans you can share with your child’s school.
- Specialized programs for kids with seizures related to complex conditions like tuberous sclerosis and neurofibromatosis.
- Services and support from a team of care coordinators, social workers, Child Life specialists and others who help your family navigate care, cope with a diagnosis and find resources in your community.
- Help with transition to adult epilepsy care.
Conditions & Treatments
We see many conditions related to epilepsy and seizures — far too many to list here. The conditions we treat vary depending on the location and providers selected. Don’t see a condition listed? Call us.
Related Specialties & Programs
Convenient Follow-Up Appointments by Video
We offer follow-up appointments through scheduled, live video visits. You can avoid waiting rooms and save travel time. Ask your doctor if this is an option for your family.
What to ExpectÂ
When you come to ÀÖ²¥´«Ã½ Children's, you get a range of diagnostic and treatment services. Here’s what to expect for certain visits.
Electroencephalogram (EEG)
An EEG is a painless test that records your child's brain wave patterns to help diagnose and understand different types of epilepsy. While not painful, the process can be unfamiliar for children. The study typically lasts about an hour, and it's often beneficial if your child can sleep during parts of it.
During the EEG:
- Your child will relax in a comfortable position.
- A technologist will carefully place small sensors (electrodes) on your child's head using a special paste.
- Your child may be asked to perform simple tasks like deep breathing or looking at flashing lights.
- We'll monitor your child's safety throughout the entire process.
To prepare for the EEG, you might get instructions about adjusting your child’s sleep schedule the night before. This can help ensure they’re relaxed or even sleepy during the test, which often improves the quality of the readings.
Getting an EEG
Getting an EEG is painless. Learn more about this test so you can help your child prepare. Share this video with them if it's appropriate for their age.
Epilepsy Monitoring Unit (EMU): Extended EEG Studies
For some children, a stay in our Epilepsy Monitoring Unit (EMU) is needed to gather more information about their brain activity. This continuous EEG monitoring provides valuable insights that help us accurately diagnose epilepsy and tailor your child's treatment plan.
What to expect during an EMU stay:
- An EEG technologist will attach electrodes to your child's scalp to continuously record brain activity.
- You'll stay with your child throughout the entire visit, typically lasting one or more nights.
- Our team, including Child Life specialists, will ensure your child stays comfortable and engaged with age-appropriate activities.
- The study concludes once we've collected sufficient data, usually with discharge in the late morning.
This extended monitoring in a controlled environment allows us to capture crucial information about your child's brain activity. It can us provide the most effective care for their specific type of epilepsy.
Ketogenic Diet Therapy for Epilepsy
For some kids with hard-to-control epilepsy, our team may recommend specialized dietary therapy, such as the ketogenic diet. This high-fat, low-carbohydrate diet can help reduce or even stop seizures in some cases.
Here's what to expect:
- You'll meet with our specialist and dietitian to discuss if this therapy is right for your child.
- Â If recommended, your child will be admitted to the hospital for a few days to start the diet safely.
- Our dietitian will create a personalized meal plan for your child.
- You'll receive training on preparing keto meals and monitoring ketone levels.
- We'll closely monitor your child's response to the diet and make necessary adjustments.
- Regular follow-up appointments and blood tests will be scheduled.
- Our team will provide resources, recipes and support for managing the diet at home and school.
- The diet is typically tried for several months and may continue for about two years if effective.
- We'll support you throughout the process from the start to potential transition off the diet.
While the ketogenic diet can be challenging, many families find the effort worthwhile when it improves their child's seizure control. Our team is here to support you every step of the way.
Vagus Nerve Stimulator (VNS) Therapy for Epilepsy
VNS therapy is an advanced treatment option for certain types of epilepsy that don't respond well to medication alone. Here's what you can expect if your child is recommended for VNS therapy:
The procedure is usually done as same-day, or outpatient, surgery.
- Your child will receive anesthesia to ensure comfort.
- The surgeon will make a small cut in the chest to implant the generator device.
- Wires will be threaded from the generator to the left vagus nerve in the neck.
- The incision will be closed with a few stitches and covered with a bandage.
- Most children go home the same day as the surgery.
- A few weeks after surgery, we'll activate and program the device.
- We'll teach you how to use the device, including the handheld magnet for seizure control.
Epilepsy Surgery
Epilepsy surgery is a procedure done on the brain to reduce or stop seizures. It's considered when a child's seizures aren't controlled by medicine or other treatments. The goal is to remove or separate the area of the brain causing seizures. While every surgery is different, you can general expect the following:
- Your child will undergo various tests to determine if surgery is appropriate and to locate the seizure source.
- A team of specialists will meet to plan the surgery.
- Some children may need intracranial EEG monitoring before surgery.
- On surgery day, your child will receive general anesthesia.
- The surgeon will perform a craniotomy to access the brain.
- Depending on the type, the surgery may involve removing brain tissue or cutting the corpus callosum (nerves that connect the two sides of the brain).
- Most surgeries last several hours.
- Your child will recover in a special unit, and may spend the first night in intensive care.
- Typical hospital stay is three to four days, depending on the procedure.
- Full recovery usually takes three to four weeks.
- Follow-up care may include various therapies and regular check-ups.
- You'll receive instructions on when to call the doctor post-surgery.